Patient and public involvement (PPI) in the NHS and care services is becoming increasingly important. At the same time, PPI is becoming a requirement for most bodies that fund health research. It is recognised that members of the public, patients and carers can play a significant role in the design and conduct of all types of applied health research.
Patients and the public, academics and health service professionals, have much to learn from each other and through working together, we can ensure that research is relevant and that it answers key questions more effectively.
The Public Involvement in Research Group (PIRg) was established by CRIPACC in 2005. Its work is varied but, most importantly, the group collaborates with researchers to bring lay voices and opinions to studies, which helps to keep them grounded and in touch with patient and public perspectives.
The PIRg adopts a 'hub and spoke' approach to membership and involvement. The 'hub' is a permanent centralised group with a core membership of around 15 people. The 'spokes' utilise local users of services, and existing PPI groups and networks for specific projects. These spoke members increase diversity and participation when and where appropriate.
Members of the hub group are involved in a variety of ways depending on their experience, interests and capacity. Support and training (where appropriate) are given to members. Typical activities include:
If so, please contact Sonya Prime for further information
Are you a researcher looking for public involvement in your research?
PIRg members are people with a variety of backgrounds and experiences, and they are involved in a range of health-related projects and at any stage of the research process.
Contact Sonya Prime for more information.
For more general information about PPI in research, please visit the INVOLVE website. INVOLVE is a national organisation supporting PPI in health and social care research, and has a wealth of information to support researchers to collaborate with patients and the public in the research process.
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