RESOURCES ON COVID-19 FOR PEOPLE WITH INTELLECTUAL DISABILITIES AND THEIR FAMILIES AND CARERS
Coping with Coronavirus. Beyond Words have produced a selection of free picture stories and illustrated guides to support people with learning disabilities and autism through the coronavirus pandemic. More details on this link: https://booksbeyondwords.co.uk/coping-with-coronavirus See also https://booksbeyondwords.co.uk/ for further information about Beyond Words.
Learning Disabilities: the impact of COVID-19. The COVID-19 pandemic has been a difficult time for many people. This video explores how COVID affected the Learning Disability Community https://www.youtube.com/watch?v=xA4Uj0YqDcg
The National Mental Capacity Forum have been running a series of rapid response webinars relating to Mental Capacity Assessment and best interests decisions re Covid-19 (including the vaccination). Details can be found on these links: https://www.scie.org.uk/mca/directory/forum/covid-webinars and https://autonomy.essex.ac.uk/covid-19/rapid-response-webinars/ (April 2020 - January 2022) and https://autonomy.essex.ac.uk/wp-content/uploads/2020/12/Vaccination-FAQs-FINAL-2.html See also https://www.mentalcapacitylawandpolicy.org.uk/resources-2/covid-19-and-the-mca-2005/ (updated 27 December 2021) .
Covid deaths and people with learning disabilities: response from the PCPLD Network, 14.11.2020. Link to view the webinar.
People with learning disabilities and Covid vaccinations. Urgent Extra Webinar from the PCPLD Network, 28.11.2020. Link to view the webinar.
Book or manage your coronavirus vaccination, for everyone on the GP Learning Disability Register. Families, carers and professionals can help with the online booking. Details available on this link: https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-vaccination/book-coronavirus-vaccination/
JCVI (Joint Committee on Vaccination and Immunisation) issued further advice on COVID-19 booster vaccination, 14.09.2021. Please see https://www.gov.uk/government/publications/jcvi-statement-september-2021-covid-19-booster-vaccine-programme-for-winter-2021-to-2022
COVID vaccination walk through with Michelle, narrated by Joe. This short video follows Michelle through the process of having the vaccination, so you can understand what to expect. Link to view the video.
Information about vaccines: for people with a learning disability and people with autism. A short film describing what a vaccine is, how vaccines are made, why you should get a vaccine, whether a vaccine makes you ill and how to decide whether to have a vaccine. Link to view the video.
Easy read guides which give information about the coronavirus (Covid-19) vaccine. Details on this link: https://www.mencap.org.uk/coronavirus/coronavirus-covid-19-vaccine
Stay at home: A guide for people with Coronavirus (COVID-19), in Easy Read version https://www.sussexpartnership.nhs.uk/node/6367/attachment.pdf
Staying healthy during coronavirus and the effects of alcohol, in Easy Read version https://www.ldw.org.uk/wp-content/uploads/2020/05/1.-Alcohol-and-Staying-Healthy-Easy-Read.pdf
Coronavirus scams in Easy Read version https://www.mencap.org.uk/sites/default/files/2020-04/Avoiding%20Scams%20ER.pdf
Guidance on COVID-19 and Prader-Willi syndrome. Link to read the guide.
Learning Disability England, Coronavirus Hub. Link to read the information.
Deaths of people identified as having learning disabilities with COVID-19 in England in the spring of 2020. Published by Public Health England. Link to read the report.
Priority concerns for people with intellectual and developmental disabilities during the COVID-19 pandemic. Published by Cambridge University Press on behalf of the Royal College of Psychiatrists. Link to read the article.
COVID-19 deaths in people with intellectual disability in the UK and Ireland: descriptive study. Published by Cambridge University Press on behalf of the Royal College of Psychiatrists. Link to read the article.
Risks of covid-19 hospital admission and death for people with learning disability: population based cohort study using the Open SAFELY platform. Published in the British Medical Journal, 15 July 2021 See https://www.bmj.com/content/374/bmj.n1592 See also editorial in British Medical Journal Covid 19: People with learning disabilities are highly vulnerable https://www.bmj.com/content/374/bmj.n1701 and also Covid-19: challenges for people with intellectual disability https://www.bmj.com/content/369/bmj.m1609
The impact of the COVID-19 pandemic on people with learning disabilities across the UK – latest findings from Wave 3. Published in September 2021 https://ltccovid.org/2021/09/23/the-impact-of-the-covid-19-pandemic-on-people-with-learning-disabilities-across-the-uk-latest-findings-from-wave-3/
Health inequalities for people with learning disabilities are even more impacted by the Covid-19 pandemic. See https://arc-sl.nihr.ac.uk/news-insights/latest-news/excess-deaths-people-mental-health-conditions-increased-during-covid-19 published in October 2021.
Coronavirus (COVID-19): guidance from the Department of Health & Social Care for care staff supporting adults with learning disabilities and adults with autism. Updated 24/08/21. Please see https://www.gov.uk/government/publications/covid-19-supporting-adults-with-learning-disabilities-and-autistic-adults/coronavirus-covid-19-guidance-for-care-staff-supporting-adults-with-learning-disabilities-and-autistic-adults
Down's syndrome campaigner Heidi Crowter on marriage and loving life. She was married in July 2020 during lockdown. She is campaigning to change the law surrounding the termination of unborn babies with Down's syndrome. https://www.bbc.co.uk/news/uk-england-coventry-warwickshire-57089602 and https://www.bbc.co.uk/news/uk-england-coventry-warwickshire-58662846 and https://www.bbc.co.uk/news/uk-politics-59432487
Covid-19 vaccinations in Shropshire Dr Ella Baines, GP in Shropshire, describes how she and the local PCN Clinical Director provided Covid-19 vaccinations in many of the learning disability care homes across their PCN in one single day in January 2021. It is followed by an account of a mother and son’s experience since March 2020. https://www.herts.ac.uk/intellectualdisability/covid-19-information/articles/covid-19-vaccinations-in-shropshire
Covid-19 vaccinations in Yorkshire and Devon. Dr Marcus van Dam, GP in North Yorkshire, and Dr Rachel Gaywood, GP in Devon, describe how they have provided Covid-19 vaccinations and other support for people with intellectual disability. https://www.herts.ac.uk/intellectualdisability/covid-19-information/articles/covid-19-vaccinations-in-yorkshire-and-devon
Dr Ella Baines, GP at Marden Medical Practice in Shrewsbury and Named GP for Safeguarding Adults and Children, Shropshire, Telford & Wrekin CCG, describes how she and the local PCN Clinical Director provided Covid-19 vaccinations in many of the learning disability care homes across their PCN in one single day in January 2021. It is followed by an account of a mother and son’s experience since March 2020.
Dr Marcus van Dam, GP in North Yorkshire, and Dr Rachel Gaywood, GP in Devon, describe how they have provided Covid-19 vaccinations and other support for people with intellectual disability.