The Contribution of Physical Activity to Social Connectivity and Wellbeing in Older Adults Living with Dementia
We’ll be sharing blogs written by ‘experts by experience’ throughout this project. Our first story is told by Rosemary, who has seen the positive impact of exercise for her parents, who were both living with mild dementiaRead Rosemary's blog
Why is the project needed?
Around 850,000 people live with dementia in the United Kingdom, and this number is predicted to rise. Dementia is a term for the decline in a person’s memory, thinking, and behaviour. The loss of these abilities can have a severe impact on everyday life. Dementia often increases feelings of isolation and loneliness.
England is one of the first countries to encourage the creation of Dementia Friendly Communities (DFCs) as part of national policy. DFCs support local communities to engage with people affected by dementia. This helps people to live independently and can improve quality of life.
Physical activity programmes can be an important part of these communities. Benefits include improving wellbeing, reducing loneliness and building connections with the local community. Yet, the impact of physical activity programmes on the experience of people living with dementia, is often overlooked.
The DEMCOM study offered a national evaluation of DFCs. One finding was that some, but not all DFCs offered physical activities for people living with dementia. Our project will advance this study.
The support of the Economic and Social Research Council (ESRC) is gratefully acknowledged.
Funding awarded by ESRC/UK Research and Innovation, Industrial Strategy Challenge Fund, Healthy Longevity Global Competition, Healthy Ageing Catalyst Award. Find out more about the The Healthy Longevity Global Competition on their website.
How are we going to work?
We will ask leaders from DFCs across England to complete an online survey. The survey will consider the opportunities and challenges of physical activity provision for people with dementia.
We will use three DFCs for our case studies, focussing on ones in Stevenage, Sheffield and Watford. These have been chosen because they each have different experiences of promoting physical activity.
We will engage with focus groups and conduct individual interviews to gain insights into the running of physical activity programmes in DFCs. This research will involve key staff. We will interview people living with dementia and their family supporters or carers to gain an understanding of their experience of participating in physical activities.
We will work closely with ‘experts by experience’ from our Patient and Public Involvement (PPI) groups, throughout all stages of the project. Their insight will add value. By way of example, we have adjusted our methodology based on feedback from the University of Hertfordshire, CRIPACC, Public Involvement in Research group (PIRg). We will also work with a Stevenage Dementia Involvement Group to understand what physical activities are available in their local area.
The development of our resources (e.g. information sheet), survey and interview questions will also benefit from our relationship with PPI contributors. Their feedback will help ensure that at all stages this project is accessible to all. We will work together to enable people with dementia to take part in interviews and consider whether any adjustments are needed.
Finally, we will work with PPI contributors to publicise our research findings to key groups. These include people living with dementia and their family supporters , DFCs and physical activity providers.
What are our key objectives?
- To create a resource for people living with dementia and their carers, so they can find dementia friendly physical activities offered in their local area.
- To produce guidelines for how to make physical activity programmes accessible for all people living with dementia. This includes people from different cultural groups and at different stages of dementia. The guidelines can be used by DFC’s which don’t currently use physical activities to engage people with dementia in their local community.
- To write a report analysing the benefits of physical activity for people living with dementia. This will include consideration to the effect of the COVID-19 pandemic on the provision and accessibility of physical activity for people living with dementia.
|December 2020 - January 2021||Apply for ethics approval and develop project materials.|
|February - March 2021||Send out the survey to DFCs and follow up with interviews.|
|April - July 2021||Interviews with key people from the three case study DFC.|
|August - September 2021||Analyse the data and draft a report of the findings.|
|September - October 2021||PPI input on the draft report. Present findings at an event held in one of the DFCs.|
|October 2021||Report finalised and presentation of findings to different key groups.|
How will we measure success?
We will produce a public report from our findings. This will be published in an academic journal. It will also be accessible via the websites of the:
- Centre for Research in Public Health and Community Care (CRIPACC)
- Research Unit for Sport, Physical Activity and Ageing in the Centre for Research in Psychology and Sport Sciences (CRiPSS ).
- NIHR Applied Research Collaboration (ARC) - East of England.
We plan to hold an event to share our research. We want to inform people living with dementia in our local area about the provision of physical activity.
Our key findings and plans will be shared online with organisations who help to improve the wellbeing of people living with dementia.
Meet the team
Elizabeth is a leading academic in the sociological understanding of physical activity and ageing. Elizabeth’s work focuses on issues of equality, diversion and inclusion in and through sport. This knowledge will inform the project’s focus on understanding whether physical activity for people living with dementia is fair and inclusive.
Elspeth Mathie carries out research into Patient and Public Involvement (PPI) and aims to include the voices of those with lived experience in health and social care research. Her research experience is working with older people and those living with dementia.
Claire Goodman’s research focuses on the needs and experiences of older people living at home and in long term care settings, including those living with, and affected by dementia.
Rebecca’s PhD focused on the use of wearable technology to understand the benefits of physical activity for people with Parkinson’s. Rebecca’s experience of working with older adults and individuals with a chronic health condition will feed into the current project to build relationships with PPI contributors and participants.