Caring for children with complex needs and disabilities

To date our research in this area has focused on support for parents caring for children with complex health needs and disabilities.

The ‘24-7’ study, published in 2017, was concerned with developing insight into the experience of parents caring for a child with complex needs in the home setting. Each of the children whose parents participated in the study was also supported by a WellChild nurse and the study was funded by the National Charity WellChild.

ENHANCE (Enhancing resilience and self-efficacy in the parents of children with disabilities and complex health needs) concerned with supporting parents to become more resilient and to develop greater self-efficacy when caring for a child with complex needs and/or disabilities. The first pilot study related to this area of work was published in November 2017.

Parental feedback on the pilot study was very positive and has informed the development of a proposal to undertake a larger feasibility study in 2019.

Full copies of each of these studies can be downloaded by clicking on the links above.

Both of these studies were supported by a group of expert parents, each of whom was able to draw upon their own experience of caring for a child with complex health need or disability.

Mark Whiting, WellChild Professor of Community Children’s Nursing, was the Principal Investigator for both of these studies. For further information contact Mark at m.1.whiting@herts.ac.uk