Take advantage of these kidney disease resources offering informative insights for patients into treatments and coping with the disease.
Explanations of self-management
- The Health Foundation – Self-Management Support
- Home Dialysis Central: Self Cannulation - Information and tips on patients applying the needle to their own fistula to feel in control of their care.
General renal information
- Da Vita - A US site with a wealth of information such as recipe recommendations, information on travelling on dialysis, and kidney education courses.
- Edinburgh Renal Unit
- Education leaflets from East and North Hertfordshire NHS Trust
- Kidney Patient Guide - A UK site focusing on the emotional impact of kidney disease.
- Kidney Research UK - Useful fact sheets, diet information and videos.
- Kidney School - Includes audio files, useful for listening on the go or if you know someone partially sighted who may benefit.
- NHS Choices - Information on Kidney Disease - A helpful and accessible guide to kidney disease providing N excellent resource for evidence based information about illnesses, their available treatments, and the science behind health stories in the newspapers.
- Polycystic Kidney Disease Foundation
Nutrition and diet
- Culinary Kidney Cooks
- The Renal Gourmet
Forums and blogs
- The Big D and Me - An engaging and often humourous blog looking at life on dialysis from Greg Collette, a man who speaks from ongoing experience.
- Fistula First - A forum for fistula care and self-cannulation.
- The Kidney Patient Guide forum - Excellent and active forum community for kidney patients and carers.
- Patients Like Me - A place to share your experiences of kidney disease.
- MyKidneyCare app - A smartphone app, produced by Guy's and St Thomas' Kidney Patient Association, to help you track your medicines and more.
- Renal Patient View - Renal Patient View aims to provide patients with simple online access to their diagnosis, test results, treatments, and consultation letters; providing an excellent tool for helping you stay involved in your care. You will need to register either with your local renal nurse or by contacting the SELFMADE team.