Patients

Take advantage of these kidney disease resources offering informative insights for patients into treatments and coping with the disease.

Explanations of self-management

General renal information

Nutrition and diet

Forums and blogs

  • The Big D and Me - An engaging and often humourous blog looking at life on dialysis from Greg Collette, a man who speaks from ongoing experience.
  • Fistula First - A forum for fistula care and self-cannulation.
  • The Kidney Patient Guide forum - Excellent and active forum community for kidney patients and carers.
  • Patients Like Me - A place to share your experiences of kidney disease.

Resources

  • MyKidneyCare app - A smartphone app, produced by Guy's and St Thomas' Kidney Patient Association, to help you track your medicines and more.
  • Renal Patient View - Renal Patient View aims to provide patients with simple online access to their diagnosis, test results, treatments, and consultation letters; providing an excellent tool for helping you stay involved in your care. You will need to register either with your local renal nurse or by contacting the SELFMADE team.

Useful charities