Patient Experience and Public Involvement

The research stream on patient and public involvement is directly linked with DH policy on involvement of the public in research and a core theme that runs throughout the CRIPACC programme areas that is concerned with the patient and user experience. The work stream therefore both supports and complements the main programme areas. The importance of the work has been recognised this year by the NHS in Hertfordshire by the Hertfordshire Hospitals Trust and Hertfordshire Partnership Trust approaching CRIPACC to develop joint programme areas in this field. HH NHS Trust has agreed to allocate £20K of their budget in 2006-07 to undertake collaborative work in this area that will also contribute to capacity in the NHS.

H. Thomas is developing links with DiPex, a web-based research charity that provides on-line information from qualitative studies of patients’ experiences, which will enable CRIPACC studies to be utilised to highlight patient experiences through the web site and also enable researchers to undertake secondary analysis of the existing data at DiPex.

CRIPACC is also in the process of becoming an affiliate of the James Lind Organisation that is concerned with the effects of and patients’ experiences of treatment outcomes.